A SPONSORED walk for Smith-Magenis Syndrome takes place this Saturday.
Families and friends of children with the rare condition will walk to raise funds for the Smith-Magenis Syndrome UK Foundation. There will be a 1711m short walk for those with Smith-Magenis Syndrome (SMS) along the Union Canal from Lock 16 to the Falkirk Wheel, followed by a circular walk for families and friends making up 11.17km and leaving the wheel at 11.17am. The event has been organised by dad Nigel Over, whose son Matthew (15), has the syndrome.
Nigel said: “I am hoping to raise awareness of this syndrome as well as raising funds for our foundation that helps many families across the UK. With the November 17 being our international awareness day, I am hoping to raise at least £1711.”
Of the nine school age children taking part, four attend Donaldson’s School in Linlithgow, including Matthew.
Major features of SMS include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioural problems.
Smith-Magenis Syndrome is quite rare, and in Scotland, the Foundation is only aware of 13 children diagnosed with this challenging genetic condition. Support the walk online at www.charitygiving.co.uk/SMS2012-Falkirk_Walk